9 ways to support people living with rare diseases and disorders - منتديات الرياضة

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قديم 02-28-2016, 05:18 PM
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افتراضي 9 ways to support people living with rare diseases and disorders

9 ways to support people living with rare diseases and disorders
ways support people living withways support people living withways support people living with
Don’t let the label fool you: A rare disease diag**sis isn’t actually so rare.

About 10% of the U.S. population lives with a rare disease or disorder, which equates to about 30 million people nationwide. If you broaden the scope, 350 million of the more than 7 billion people in the world are estimated to live with a rare condition.

See also: 10 apps increasing health care access for low-income patients


with such a large pool of people affected, chances are you probably k**w someone with a medical diag**sis considered out-of-the-ordinary

For those living with rare conditions, navigating a diag**sis can be tricky due to lack of research and reliable treatment. Often, rare diseases stump even the most k**wledgeable doctors, with experts on rare diseases few and far between — if they exist at all. In the midst of this often overwhelming reality, the need for advocacy and support is essential. Read more...

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