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02-28-2016, 05:18 PM
9 ways to support people living with rare diseases and disorders
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Don’t let the label fool you: A rare disease diag**sis isn’t actually so rare.
About 10% of the U.S. population (https://globalgenes.org/rare-diseases-facts-statistics/) lives with a rare disease or disorder, which equates to about 30 million people nationwide. If you broaden the scope, 350 million of the more than 7 billion people in the world are estimated to live with a rare condition.
See also: 10 apps increasing health care access for low-income patients (http://mashable.com/2016/01/20/health-care-apps-low-income/)
With such a large pool of people affected, chances are you probably k**w someone with a medical diag**sis considered out-of-the-ordinary
For those living with rare conditions, navigating a diag**sis can be tricky due to lack of research and reliable treatment. Often, rare diseases stump even the most k**wledgeable doctors, with experts on rare diseases few and far between — if they exist at all. In the midst of this often overwhelming reality, the need for advocacy and support is essential. Read more... (http://mashable.com/2016/02/28/rare-disease-disorder-activism/)
More about Health (http://mashable.com/category/health/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial), Advocacy (http://mashable.com/category/advocacy/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial), Social Good (http://mashable.com/category/social-good/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial), Activism (http://mashable.com/category/activism/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial), and Us World (http://mashable.com/category/us-world/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial) http://ad.doubleclick.net/ad/mash.to/rss;pos=atf;tag=ad;mtype=standard;type=rss;sz=300x 250;ord=1456665421 (http://ad.doubleclick.net/jump/mash.to/rss;pos=atf;tag=ad;mtype=standard;type=rss;sz=300x 250;ord=1456665421)http://feeds.feedburner.com/~r/Mashable/~4/tRs3YyIIRlI
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Don’t let the label fool you: A rare disease diag**sis isn’t actually so rare.
About 10% of the U.S. population (https://globalgenes.org/rare-diseases-facts-statistics/) lives with a rare disease or disorder, which equates to about 30 million people nationwide. If you broaden the scope, 350 million of the more than 7 billion people in the world are estimated to live with a rare condition.
See also: 10 apps increasing health care access for low-income patients (http://mashable.com/2016/01/20/health-care-apps-low-income/)
With such a large pool of people affected, chances are you probably k**w someone with a medical diag**sis considered out-of-the-ordinary
For those living with rare conditions, navigating a diag**sis can be tricky due to lack of research and reliable treatment. Often, rare diseases stump even the most k**wledgeable doctors, with experts on rare diseases few and far between — if they exist at all. In the midst of this often overwhelming reality, the need for advocacy and support is essential. Read more... (http://mashable.com/2016/02/28/rare-disease-disorder-activism/)
More about Health (http://mashable.com/category/health/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial), Advocacy (http://mashable.com/category/advocacy/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial), Social Good (http://mashable.com/category/social-good/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial), Activism (http://mashable.com/category/activism/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial), and Us World (http://mashable.com/category/us-world/?utm_campaign=Mash-Prod-RSS-Feedburner-All-Partial&utm_cid=Mash-Prod-RSS-Feedburner-All-Partial) http://ad.doubleclick.net/ad/mash.to/rss;pos=atf;tag=ad;mtype=standard;type=rss;sz=300x 250;ord=1456665421 (http://ad.doubleclick.net/jump/mash.to/rss;pos=atf;tag=ad;mtype=standard;type=rss;sz=300x 250;ord=1456665421)http://feeds.feedburner.com/~r/Mashable/~4/tRs3YyIIRlI