A young woman?s skin blisters and burns if she is exposed to only a few minutes of daylight. Lizzie Tenney suffers from the rare, and extreme, skin disorder Xeroderma Pigmentosum. With there only being around 300 diagnosed cases in the United States ? it makes Lizzie one in a million. Xeroderma Pigmentosum commonly known as XP, is a rare degenerative disease, causing the skin to be unable to repair its own DNA once exposed ? and damaged by ? the sunlight?s harmful ultraviolet (or UV) rays, even resulting in skin cancer, neurological problems and developmental delays. In Lizzie?s case she has had skin cancer surgery 43 times. The 22-year-old, from Highland, Utah, has to use a specially-designed metre that measures the level of UV rays and tells her when it is safe to go outside.
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