Living with epidermolysis bullosa: the worst disease you've never heard of
 

http://img-s-msn-com.akamaized.net/t...=f&x=476&y=235Living with the rare skin condition k**wn as epidermolysis bullosa makes every action'from eating to sleeping'an agony for Jonathan Pitre. Sharing his story to help others has turned out to be the easiest thing of all.

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