{"id":114131,"date":"2019-03-03T03:21:08","date_gmt":"2019-03-03T00:21:08","guid":{"rendered":"http:\/\/ww-vb.mine.nu\/w108\/in-honor-of-rare-disease-day-2019-2-28-19\/"},"modified":"2019-03-03T03:21:08","modified_gmt":"2019-03-03T00:21:08","slug":"in-honor-of-rare-disease-day-2019-2-28-19","status":"publish","type":"post","link":"https:\/\/hameed.nwar.uk\/sa\/in-honor-of-rare-disease-day-2019-2-28-19\/","title":{"rendered":"IN HONOR OF RARE DISEASE DAY 2019 (2.28.19)"},"content":{"rendered":"<p><iframe loading=\"lazy\" width=\"580\" height=\"385\" src=\"https:\/\/www.youtube.com\/embed\/1Mfq6GJyWcE\" frameborder=\"0\" allowfullscreen><\/iframe><br \/>\n<br \/>(Footage from IG. So it\u2019s short and not good quality )<\/p>\n<p>In honor of #rarediseaseday.<br \/>\n**** often on for 20 years I have been sick. Each year I declined in my health. Some months I felt like I was on top of the world until I wasn\u2019t. I would relapse or have something new to add to my list. I have over a dozen conditions with about half of them that are rare.<br \/>\n**** some days I feel on top of the world and want to jump out of a plane and other days I\u2019m terrified of driving, some days I want to spend endless hours cooking an amazing beautiful meal and other days I go without eating, some days I can\u2019t even get out of bed and other days I want to throw on a dress look pretty and go dancing, some days I want to cry and scream and other days I can\u2019t stop smiling that my cheeks hurt.<br \/>\n******* there is no which way to look when you have an illness. We all look different. I have to member that I live in the skin and I\u2019m not here to prove to anybody that I am sick when they believe I don\u2019t look it.<br \/>\n** I wake up every day trying to live the best life I can. It\u2019s not the end of the world, at least not yet\u2026 Not for me anyway. And with that I make sure to live every day. I wouldn\u2019t change anything and that includes me being in a healthy body. Because without the skin that I am in who knows who could have been. I know who I am now. A strong woman who has a broken body. That\u2019s it\u2019s&#8230; BROKEN. But I am who I am and I love who I am and I rather be in a broken body then a healthy body any day.<br \/>\n****** Because of that&#8230;.I celebrate Rare Disease Day 2019. ?\ufe0f<br \/>\nMy Instagram: @_ZebraStrong<br \/>\nMy IG Project: @zebrastrongcarepackages<br \/>\n&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;I<br \/>\nPostural Orthostatic Tachycardia Syndrome:<br \/>\nhttp:\/\/www.dysautonomiainternational.org\/page.php?ID=30<br \/>\nNeurocardiogenic Syncope:<br \/>\nhttps:\/\/www.sharecare.com\/health\/brain-nervous-system\/what-neurocardiogenic-syncope<br \/>\nHep C:<br \/>\nhttp:\/\/www.hepchope.com\/?utm_source=bing&#038;utm_medium=cpc&#038;utm_campaign=Search%20-%20UNDX%20-%20Awareness&#038;utm_term=hep%20c&#038;utm_content=Hep%20C%20General%20-%20Exact%20-%20Overlap&#038;gclid=CMik7KrB_9sCFbCHxQIdB8sC2Q&#038;gclsrc=ds<br \/>\nCluster Headaches:<br \/>\nhttps:\/\/www.mayoclinic.org\/diseases-conditions\/cluster-headache\/symptoms-causes\/syc-20352080<br \/>\nNarcolepsy:<br \/>\nhttps:\/\/www.mayoclinic.org\/diseases-conditions\/narcolepsy\/symptoms-causes\/syc-20375497<br \/>\nSuperventricular Tachycardia:<br \/>\nhttps:\/\/www.webmd.com\/heart-disease\/what-is-supraventricular-tachycardia<br \/>\nPanic Attacks:<br \/>\nhttps:\/\/en.wikipedia.org\/wiki\/Panic_attack<br \/>\nTourettes:<br \/>\nhttps:\/\/www.webmd.com\/brain\/tourettes-syndrome<br \/>\nObsessive-Compulsive-Disorder :<br \/>\nhttps:\/\/www.webmd.com\/mental-health\/obsessive-compulsive-disorder<br \/>\nMast Cell Activation Syndrome:\u00a0<br \/>\nhttps:\/\/tmsforacure.org\/symptoms\/symptoms-and-triggers-of-<br \/>\nBradycardia:<br \/>\nhttps:\/\/www.webmd.com\/heart-disease\/bradycardia<br \/>\nGastritis:<br \/>\nhttps:\/\/www.webmd.com\/digestive-disorders\/digestive-diseases-gastritis<br \/>\nRestless Leg Syndrome:<br \/>\nhttps:\/\/www.webmd.com\/brain\/restless-legs-syndrome\/restless-legs-syndrome-rls<br \/>\nPatellafemoral Syndrome:<br \/>\nhttps:\/\/www.mayoclinic.org\/diseases-conditions\/patellofemoral-pain-syndrome\/symptoms-causes\/syc-20350792<br \/>\nBorderline Personality Disorder<br \/>\nhttps:\/\/www.nimh.nih.gov\/health\/topics\/borderline-personality-disorder\/index.shtml<br \/>\nAutism(ASD1) with severe verbal over-stimulation and OCD<br \/>\nhttps:\/\/www.nimh.nih.gov\/health\/topics\/autism-spectrum-disorders-asd\/index.shtml<br \/>\nSURVIVOR: Pre Ovarian Cancer &#038; Advanced Endometriosis in 2010)<br \/>\n&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8211;<br \/>\nCAMERA<br \/>\n-Canon T6i<br \/>\n-Iphone X<br \/>\n&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;&#8212;<br \/>\nEDITING SOFTWARE<br \/>\n-Wondershare Filmora<br \/>\n\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014-<br \/>\nMUSIC<br \/>\n~RISE (Katy Perry Cover) by SUPERFRUIT, Mary Lambert, Brian Justin Crum, Mario Jose<br \/>\nhttps:\/\/www.youtube.com\/watch?v=U85U3&#8230;<br \/>\n<br \/><a href=\"https:\/\/www.youtube.com\/watch?v=1Mfq6GJyWcE\">source<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>(Footage from IG. So it\u2019s short and not good quality ) In honor of #rarediseaseday. **** often on for 20 years I have been sick. Each year I declined in my health. Some months I felt like I was on top of the world until I wasn\u2019t. I would relapse or have something new to &hellip;<\/p>\n","protected":false},"author":1,"featured_media":114133,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[33],"tags":[92156,19360,40365,92157,11956,22525,22869,19990,92155,19351,20571],"class_list":["post-114131","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-33","tag-brown-food","tag-delicious","tag-eating-healthy","tag-eating-recipes","tag-food","tag-food-preparation","tag-healthy-diet","tag-healthy-eating","tag-healthy-eating-system","tag-healthy-food","tag-nutrition"],"_links":{"self":[{"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/posts\/114131","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/comments?post=114131"}],"version-history":[{"count":0,"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/posts\/114131\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/media\/114133"}],"wp:attachment":[{"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/media?parent=114131"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/categories?post=114131"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/hameed.nwar.uk\/sa\/wp-json\/wp\/v2\/tags?post=114131"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}